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Next, she began chemotherapy, which she continued to have for the next two-and-a-half years, after which the tumour appeared to have shrunk, giving the family some long-awaited good news.
The treatment appeared to help but the tumour has since grown and her parents now fear this Christmas maybe their last with Orla.Then, Orla began to tug down on her right ear in distress.'It was obvious she was in pain, but she couldn't articulate exactly where,' said Susan, who is a full-time carer to Orla.'We went back to the GP, this time thinking it was an inner ear infection, but tests seemed to come back fine.'Things came to a terrifying head in May 2012, when Orla collapsed completely out of the blue.She was raced to Lister Hospital in Stevenage where, in the early hours of the next morning, she began fitting, suffering a seizure so severe that medics had to place her in an induced coma.Then, around nine months old, she began to frequently vomit, throwing up her milk most mornings.Worried Susan – who has another child, three-year-old Edward with her designer husband Simon, 37 – took her daughter to the GP, who initially thought she'd caught a simple bug.I don't really know what it is, but I know it's very bad.
I don't want any presents I want Santa to help and so the charity can help Orla and other people, and my friend can have a cousin.' Susan, of Stevenage, Hertfordshire, said that when little Orla first arrived into the world, she was a 'happy, bouncy baby'.
The letter, which moved his mother Tanya Bedford, 41, and Orla's mother Susan Hermitage, 37, to tears, was passed to Susan via her sister Charlotte, Thomas' mum.
Explaining why he wrote the letter, Luke said: 'My best friend Thomas told me his cousin has cancer.'She's very poorly.
It isn't uncommon for the Bad Santa to herald his appearance with a twisted form of the 'naughty or nice' list - usually with severe penalties for whoever is judged "naughty".
See also The Krampus, a trope based on a concept often confused with this one.
They then ran an MRI scan, which found a 7cm by 5cm tumour on the toddler's brain.'It was enormous, so big that it'd pushed her brain to the edge of her skull, where it had started to be forced down her spinal column,' said Susan.'The doctors said to us that it was very touch and go, and she probably wouldn't make the next few hours.'The staff needed to find a hospital that had a neurosurgeon and a spare intensive care bed imminently.